Really brave to post those pictures, it's good for people to see that 'invisible' illnesses suck just as much if not more than visible ones!
Thank you for that. I just got your message. My phone is terrible with tumblr notifications. I appreciate it because I really never post anything but my best face normally. I was just fed up of showing only my best face even on my sickness blog.
Kurt Cobain’s death is trending as he died 20 years ago today. Some of the comments on Facebook call him selfish and others blame him for not getting over his issues. It bothers me because he was basically a spoonie.
He had an undiagnosed stomach problem that he self medicated because it was the worst. I am pretty much undiagnosed. I have pain and nausea everyday. Reflux knocks the wind out of me. Sometimes I just want the pain to end and maybe if I was someone noteworthy I would have taken all the drugs I could get my hands on too to get some relief and forget the pain.
I’m sad he lost his battle and although it was a combination of things I still hope that chronic pain and invisible illness continues to demand treatment and understanding. He was a spoonie and I can’t imagine being a chronic pain sufferer and being in one of the biggest bands of the decade.
I dunno I guess I take it a bit more personally because my friends don’t get what its like to be in pain 24/7. It’s a living nightmare at times.
Fatigue. Underweight. Times with food restrictions. Blood in the wrong place. Joint pain. Arthritis. Doctors appointments. Thousands of toilets. Pain. Cramps. Lack of understanding. Fighting every day. Frustration. Medication. Immunosuppression. Side effects….
My boyfriend is talking about naming our future cats after dictators. So far we have Chairman Meow, Meowseph Stalin, Pussolini, and Adolf Kitler. I think we need a disenfranchised dog called Karl Barx just to balance it out a little. Or maybe a rebellious little Fido Castro?
Didn’t think I’d consider naming a cat after advocates of war and ethnic cleansing. Thanks toysforthetoygod
A sort of pen pal / support coach / sponsor type of person? Kind of like a Big Brother / Big Sister with your disease?
If you’re interested, drop me a line with your age, diagnoses, gender preference of your buddy, country / state (whatever you’re comfortable with). I’ll compile a list and try to match people based on illnesses.
I think it would be nice to have a partner in this crazy Spoonie world, don’t you?
I had a triumphant day today because I was well enough to cook something, and then after cooking it I still wanted to eat it! That is a really big deal for me and a lot spoonies I’m sure because often with bowel disease the process of cooking can actually bring on nausea and loss of appetite.
I exist on mostly bread rolls and ready salted crisps. I also reheat soups my mum makes me. I hate that my diet is so limited, but its all I can stomach most days when I’m alone and there is no one to prepare food for me.
I used to love cooking, and was the main cook in my flat share, but now it happens once in a blue moon because I’m either too ill or tired or know I won’t wanna eat by the end of it.
Anyway today I made chicken, eggs and potatoes and it was nice to have something hot and fresh to eat. I wanted to share my happiness in the small victory because it was a success for me.
I hope all my spoonie friends are having good days too
We had a very productive day yesterday, with Sox further refining his abilities on Anime Studio and creating a lovely new gif as a teaser for a potential Woo sequel. However, after posting it on the forums we were having a little look around and stumbled across our nomination for Best Short Game…
As you may or may not know, I made a video game last year for a game making contest. We had 1 month to make something 100% original and me and my friend Sox participated with our first game.
Shockingly, our entry Witch Woo won and 7 months later we are in the running to win another award, The AGS Best Short Game of 2013 award.
We are really excited so just wanted to share. Dropped Monocle is our Dev blog and if you like free adventure/puzzle games feel free to stop by and download our wares! We are working on our next release so will update you when the time comes :)
“Until you heal the wounds of your past, you are going to bleed. You can bandage the bleeding with food, with alcohol, with drugs, with work, with cigarettes, with sex; But eventually, it will all ooze through and stain your life. You must find the strength to open the wounds, Stick your hands inside, pull out the core of the pain that is holding you in your past, the memories and make peace with them.”—Iyanla Vanzant (via onlinecounsellingcollege)
...eat/move for a day or so after taking it. another downfall is a bit of hair-loss,but it's nothing too extreme. i have to admit,i stopped taking it a couple of times due to the severity of my side-effects,but i immediately regretted stopping it. it really does work wonders,everyone i've talked to sing it's praises. having said all of that,the positives outweigh the negatives,in my opinion! you can ask your doc to provide anti-nausea tablets to combat that (i'm on stemetil,it's used for...
Thank you for your message. I am not using the drug myself but my friend found the info really helpful. Really grateful for your response. It has meant a lot to them :) x
“A psychologist walked around a room while teaching stress management to an audience. As she raised a glass of water, everyone expected they’d be asked the “half empty or half full” question. Instead, with a smile on her face she inquired, “How heavy is this glass of water?” The answers called out ranged from 8oz to 20 oz. She replied, “The absolute weight doesn’t matter. It depends on how long I hold it. If i hold it for a minute, its not a problem. If i hold it for an hour, i’ll have an ache in my arm. If i hold it for a day, my arm will feel numb and paralyzed. In each case, the weight of the glass doesn’t change, but the longer i hold it, the heavier it becomes.” She continued, “The stress and worries in life are like that glass of water. Think about them for a while and nothing happens. Think about them for a big longer and they begin to hurt. And if you think about them all day long, you will feel paralyzed - incapable of doing anything.” Always remember to put the glass down.”—(via ez-rae)