A sort of pen pal / support coach / sponsor type of person? Kind of like a Big Brother / Big Sister with your disease?
If you’re interested, drop me a line with your age, diagnoses, gender preference of your buddy, country / state (whatever you’re comfortable with). I’ll compile a list and try to match people based on illnesses.
I think it would be nice to have a partner in this crazy Spoonie world, don’t you?
I had a triumphant day today because I was well enough to cook something, and then after cooking it I still wanted to eat it! That is a really big deal for me and a lot spoonies I’m sure because often with bowel disease the process of cooking can actually bring on nausea and loss of appetite.
I exist on mostly bread rolls and ready salted crisps. I also reheat soups my mum makes me. I hate that my diet is so limited, but its all I can stomach most days when I’m alone and there is no one to prepare food for me.
I used to love cooking, and was the main cook in my flat share, but now it happens once in a blue moon because I’m either too ill or tired or know I won’t wanna eat by the end of it.
Anyway today I made chicken, eggs and potatoes and it was nice to have something hot and fresh to eat. I wanted to share my happiness in the small victory because it was a success for me.
I hope all my spoonie friends are having good days too
We had a very productive day yesterday, with Sox further refining his abilities on Anime Studio and creating a lovely new gif as a teaser for a potential Woo sequel. However, after posting it on the forums we were having a little look around and stumbled across our nomination for Best Short Game…
As you may or may not know, I made a video game last year for a game making contest. We had 1 month to make something 100% original and me and my friend Sox participated with our first game.
Shockingly, our entry Witch Woo won and 7 months later we are in the running to win another award, The AGS Best Short Game of 2013 award.
We are really excited so just wanted to share. Dropped Monocle is our Dev blog and if you like free adventure/puzzle games feel free to stop by and download our wares! We are working on our next release so will update you when the time comes :)
“Until you heal the wounds of your past, you are going to bleed. You can bandage the bleeding with food, with alcohol, with drugs, with work, with cigarettes, with sex; But eventually, it will all ooze through and stain your life. You must find the strength to open the wounds, Stick your hands inside, pull out the core of the pain that is holding you in your past, the memories and make peace with them.”—Iyanla Vanzant (via onlinecounsellingcollege)
...eat/move for a day or so after taking it. another downfall is a bit of hair-loss,but it's nothing too extreme. i have to admit,i stopped taking it a couple of times due to the severity of my side-effects,but i immediately regretted stopping it. it really does work wonders,everyone i've talked to sing it's praises. having said all of that,the positives outweigh the negatives,in my opinion! you can ask your doc to provide anti-nausea tablets to combat that (i'm on stemetil,it's used for...
Thank you for your message. I am not using the drug myself but my friend found the info really helpful. Really grateful for your response. It has meant a lot to them :) x
“A psychologist walked around a room while teaching stress management to an audience. As she raised a glass of water, everyone expected they’d be asked the “half empty or half full” question. Instead, with a smile on her face she inquired, “How heavy is this glass of water?” The answers called out ranged from 8oz to 20 oz. She replied, “The absolute weight doesn’t matter. It depends on how long I hold it. If i hold it for a minute, its not a problem. If i hold it for an hour, i’ll have an ache in my arm. If i hold it for a day, my arm will feel numb and paralyzed. In each case, the weight of the glass doesn’t change, but the longer i hold it, the heavier it becomes.” She continued, “The stress and worries in life are like that glass of water. Think about them for a while and nothing happens. Think about them for a big longer and they begin to hurt. And if you think about them all day long, you will feel paralyzed - incapable of doing anything.” Always remember to put the glass down.”—(via ez-rae)
people with anxiety disorders are so brave like we feel unbearable amounts of anxiety over doing things like going to the doctor or getting on a plane or talking on the phone or taking a test but sometimes we find the strength to do those things anyway even though we’re terrified out of our minds and that’s really amazing. people with anxiety are brave as hell
Being brave is doing something you are afraid of regardless of the fear you feel. The absence of the fear doesn’t make you brave, its the courage you have to do it anyway.
Racist Halloween costumes are nothing new. Each year, people try to push the envelope. They think they’re being funny, but really, they’re using the freedom of Halloween, the pass we all get to indulge our secret selves, to say, to people of color: “This is how we see you. This is how we think of you.”
Though it is infuriating that we still need to have this conversation about why blackface is unacceptable, there may be some comfort in the knowledge that when people put on the mask of blackface, they reveal who they truly are.